Your Kind Feedback
Thanks for your many kind comments and support for my book Lyme Madness™.
You're the reason I keep going.
I look forward to reading your book, Lori. Without the dedication of mothers, we would be absolutely nowhere with Lyme disease. It is MOTHERS, concerned about their families, their children, that has sparked ALL progress in this field!!!!- Kenneth Liegner, MD
Lori, I read your story about Lyme disease. If only I had a $ for everyone who was told their problem is in their head. Technically, I guess it’s correct. But the comment is also so wrong – and it kills any hope for people after hearing that. When HOPE is gone, serotonin, dopamine, norepinephrine, etc., crash and makes the inflicted even worse.- Dave Siever, Mind Alive Inc.
With Lyme Madness, Lori Dennis joins the Pantheon of alarmed mothers who have ‘banged the teapots’ to force dense and complacent governments DO SOMETHING to address the dangerous disease they perceived devastating their children, families and communities. Like the title of Polly Murray’s book The Widening Circle, Lyme Madness is a triple entendre.- Kenneth B. Liegner, M.D.
First is the irrational way the public health power structures have formulated their conceptualization of and response to the illness, the U.S.’s Centers for Disease Control, lost bellwether, leading its own as well as other nations off a cliff. Second, the patient population, abandoned and ridiculed by the medical establishment, government and private health insurers, is often left to fend for itself in an effort to find health and healing. This can sometimes lead down dangerous paths of uncharted territory as desperate patients cast about, like drowning rats, for something, anything, some ‘life-line’ to keep their sinking heads above water. Third, Lori Dennis and many other mothers of patients and the patients themselves (to borrow the classic line from the movie Network) are mad as hell and they’re not going to take it anymore. Maddeningly too, increasing patient militancy is met with impunity. However, as more and more individuals at all levels of society are being impacted, power relationships are shifting and the Centers for Disease Control and the errant authors of the 2000 and 2006 Infectious Diseases Society of America Lyme Disease Guidelines are finding themselves increasingly on the defensive.
Lori Dennis, a psychotherapist, shares her and her son’s experiences down what she calls the ‘rabbit hole’ of Lyme disease. Together, son and mother struggle to define diagnosis, traverse the vicissitudes of the illness and the challenges of discovering, of the available allopathic and alternative medical approaches, those which enable her son to recover. This eye-opener will be helpful to others who find themselves grappling with Lyme and other tick-borne diseases, navigating an arena full of contradictory advice and adversarial experts. It is also a clarion call to all to compel governments and their public health infrastructures to acknowledge the many problems with which these diseases confront us and to commit the financial, scientific and medical resources and the grit to solve them – to end the madness.
After reading Lyme Madness it raises the question—what is the more powerful force, a dysfunctional healthcare system or a motivated mother who wants the best for her son? The problems her son encountered accessing proper assessment and care is a story we have heard far too many times, in Canada, in the United States and in many other countries. It is frustrating to see clinical healthcare policy created by bureaucrats and researchers who lack true clinical expertise and are distant from the clinical realities and the full price of suffering and impairment caused by Lyme and associated diseases. Many will read this book and identify with her frustration, be motivated by her persistence and gain some insights on effective strategies. One thing is clear, when dealing with an illness that is controlled by dogma and special interests, it is necessary to do thorough research and to be a tenacious advocate. I am sure this book will help others who are searching for answers and solutions.- Robert C Bransfield, MD, DLFAPA
Lori Dennis’ incredible commitment to helping her bright, competent, Lyme-infected adult son Matt is only seconded by the tremendous contribution she has made with this memoir. This is the book she and Matt and thousands of Lyme-impacted people needed four years ago … 20 years ago. Don’t be deterred by Dennis' periodic, though well-earned, polemics - if Lyme is somehow in your life, this one book can catapult you years ahead in your quest for understanding, and a path thru the Lyme labyrinth so vividly described herein.- Dr. Greg O'Donohue, MBA (c.psych)
This is a cogent, incisive, well-researched, well-developed contribution born of enormous frustration and disappointment with not just the allopathic (Western) medical system, its insurers, its pharmaceutical brethren and the endemic politics of power and profit that can so adversely affect any individual trying to overcome what Dennis presents here as this tremendously complicated illness, but all providers who are not Lyme Literate and “try" anyway, often, as evinced here, doing more harm than good. Epistemology is the study of how we know or make sense of things - Lyme Madness is a call to all providers to become Lyme literate and to make room for Lyme sufferers in their epistemologies and in their practices.
We can do much better! Ultimately, this memoir is yet another incredibly generous gift Lori Dennis offers her son, other Lyme sufferers, and those who love and care for them - and who just won’t quit! A formidable read.
“Lyme Madness is a compelling, heart-breaking story of a Canadian mother dedicating all of her time, energy, intelligence and love to get her son back to health. It reads like a travel journey. A journey into what the author rightly calls Alice’s rabbit hole to Wonderland, set in the context of modern day health care. It is a well written and documented book.
This book clearly shows what the love of a mother can do and how many mothers are now standing up for their ill children. It will be a guide for other parents when their children suddenly fall ill, are misdiagnosed, mistreated and finally shunned or invalidated by the doctors you supposed would be knowledgeable and willing to help you. Or it may even be a clear warning to look into this subject, before they fall as ill as countless others have, all over the world.
Madness has two meanings. It is the experience of discovering the madness of a system invested by groupthink, vested interests, misinformation and corruption along with a system that punishes doctors who are willing to help parents like Lori Dennis. The second is the madness or anger that arises after years of frustration of seeing your own child and many like him suffer needlessly. This book deals with both.
The author’s personal experience combined with her professional knowledge as a therapist will provide other parents with a guide through this rabbit hole and will save them much frustration, time and money. It provides them with insights into the many medical and psychological pitfalls in Lymeland, with practical approaches, with a brave investigation of reasons why the status quo has been like this for over forty years and with a range of stories by other people. These personal stories will validate other parents and Lyme patients’ own sanity on an often lonely journey back to health––with the glimmers of light at the end of the tunnel that this book fortunately also provides.
May this book add to the mounting evolution of activities to end the Madness of negating and downplaying Lyme as the global epidemic that it is.”
- Huib Kraaijeveld, author of “Shifting the Lyme Paradigm; the Caretakers’ Guide through the Labyrinth” and founder of the On Lyme Foundation, the Netherlands
I applaud Lori Dennis for her efforts in attempting to educate the public about this life-altering/life threatening infection misclassified as a simple nuisance disease. Personal experiences described in her book “Lyme Madness” are not new however as stories like this have been hidden from the public for over three decades. The focus over this period has been to discredit the horribly sick and disabled as opposed to finding a cure for this antibiotic resistant/tolerant superbug; truly “Madness” for sure and a crime against humanity on a growing global scale. Those who have studied the wrongful handling of this disease believe that the rush to create a vaccine for Lyme led to its mishandling. In fact, the lead investigators of the two previous Lyme vaccines claim that Lyme is easily diagnosed and easily cured with 1-2 weeks of ABX. Prior to vaccine development, persistent infection (Chronic Lyme) was commonly reported in the literature. Shameful affair indeed as a congressional investigation is long overdue.
Kudos to Lori Dennis for writing “Lyme Madness”, a must read for the ill-informed.
- Carl Tuttle, Lyme Activist Hudson, NH USA
Together, let's stop LYME MADNESS™