“There is no greater agony than bearing

an untold story inside you.”

~ Maya Angelou, I know why the caged bird sings

Lyme Madness™ is a memoir and a cautionary tale, driven by my son's illness – and includes a number of personal accounts written by other Lyme sufferers who have their own 'Lyme Madness' stories to tell.

Here, I invite you to share your Lyme stories. There is nothing more healing than being heard.


Lyme sufferers have personal tales of facing outrageous obstacles, exhibiting tremendous courage, and modeling untold heroism. Most of you, however, don’t get a chance to tell your story – your story of illness, of pain, of sheer neglect and global medical indifference toward an illness that has stolen your health, your livelihood, your relationships, your savings, your present, your future, and, for some, their lives.


Please send me your story.  I’d be happy to post it here.


Tell me about your pain, your angst, your sadness, your fears and frustrations about an illness that won’t let up and a medical system that doesn’t seem to care.

If we gather enough voices here, maybe someone, somewhere with political and medical influence will hear us and make some much- needed changes regarding a disease that to date has garnered so little support and so few advances.


Together, let's stop LYME MADNESS™